The Ehlers-Danlos Society The Ehlers-Danlos Society is one of my favorite places for information resources and has lots of printable resources which can be pretty handy when meeting and trying to educate new doctors on your condition so you can get the best care. 

some of the resource guide printables can be hard to hunt down on their site, but I find them extremely helpful (especially the Dentist one!) so I've linked them here for you (PDF will open in new window):

General

Dentistry

Pain Management

Ophthalmology

Vascular

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PubMed- This is probably my all time favorite site! It's not EDS specific, but it's medical studies and publications, most of which are free access. You can search anything so it's really helpful when a new issue pops up and you're wondering how EDS affects treatment options or prevalence. Here's a couple of my faves from them:

Gene Reviews: Hypermobile EDS

Gene Reviews: Vascular EDS

Gene Reviews: Classic EDS

Pain and EDS

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This section is a work in progress, I've still got much more to add!