06/02/2026

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After far too long I'm finally starting to get back online and get things updated.

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Starting with shipping issues:

Since late summer 24 I've had increasing issues with USPS, which is the result of the intentional destruction of the postal service, like so many other things in this country right now. This article has a thorough explanation of what's happening and I highly recommend reading, as this is going to be important with the upcoming election USPS Crisis: The Downfall of the Postal Service Explained

It's been one thing after another-started with falsifying delivery scans late summer of '24, which is a longstanding issue as can be seen here, but with the election it was completely out of control. Then when I moved in spring of last year the new post office absolutely refused to scan in packages which took away my ability to file claims if anything happened. Fall last year they added to that by automatically voiding "unused" labels l packages It's become common to see packages taking weeks bouncing back and forth across the country, packages sitting weeks at sorting facilities, I now have shipments being returned for bogus reasons like "animal interference" and most recently there's been issues with USPS issuing the same tracking number to multiple packages. I've had to remove the Priority options as even the Express is now taking a full week, and they've stopped guaranteeing shipments. And they're now recycling tracking numbers after 2-3 weeks when it should be 4 months.

All of this has led to 2 years worth of having to replace 20%-30% of the orders I ship, without the ability to file claims for them. Most of them were delivered or replacement orders that were delivered and I wouldn't find out anything was wrong until I received a chargeback for the order not being received. There's many online sellers in several online forums (and I'm aiming to get links to them added here in the coming weeks) that have gone under from exactly this, many that are going under, and I'm fighting to stay afloat now because of it. 

Unfortunately I've also been living in an extremely rural area where I don't even have home mail service, and UPS or FedEx etc absolutely won't pick up here, which is a huge contributing factor since it's rural services they're phasing out first. Due to this (and a few other factors) I've made the decision to move to a larger city to make those options available. It might cause some slight processing delays for a few weeks as moving is a long process with the way my health is, but I'll be near a processing hub and will be able to use UPS. As much as I want to continue supporting the USPS, I can't do it at the expense of my ability to support myself.

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The other issue has been the health nightmare. 

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It's not something I've been public about simply because I haven't been able to. The last 2 years of my life have easily been the hardest I've been through. While I was diagnosed with hEDS back in 2011 and have been disabled and pretty much housebound since my health took a sharp turn downhill over the winter of 23-24. Spring 24 I woke up one day with bilateral trigger thumb which prevented me from working efficiently and started pushing myself to work longer hours trying desperately not to fall behind. The girl who had been working with me for the previous year and a half, who I'd known for over a decade and considered a close friend, bailed out and left me in a really bad spot, and all I could really do about it was keep working. I don't have family or support or any options for help, I've just got myself, and giving up is never an option for me.

From May until August I was skipping sleep so I could push myself to work 100+ hour weeks and I considerably accelerated a process that likely would've taken a few more years to reach that point if I hadn't, and by January of last year was in the hospital with my body shutting down. The exact condition I'd identified in my labs back in 2015 that at least a dozen doctors over the last decade told me wasn't an issue and refused to treat came to a head. Myxedema crisis with a whopping side of Hashimoto's encephalopathy, the hypertrophic cardiomyopathy that had been causing strokes since 2014 progressed to include long QT and pericardial effusion. I'd stopped responding to both heart meds months earlier. I'd lived feeling like my bones were on fire for years, internal tremor at night so bad I couldn't sleep, joints screaming at every movement, utter inability to sleep at night but nodding off sitting up working, blurry vision, brain fog that was bordering on the early stages of dementia, Reynaud's got bad enough it was causing chilblains, nerve pain out of control, couldn't eat at all. I've lived with this illness a long time, I've been to the brink or death before, I knew how bad it was.

However, just like every other doctor over the last decade they once again brushed it off and refused to treat it....and I had enough. Bought meds online, a bunch of medical textbooks, and started treating it myself.

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I never in a million years would've imagined I was gonna wake up one day and not be in pain again. The EDS diagnosis was a textbook case, it was confirmed by multiple doctors, two of which said I was the most hypermobile patient they'd treated.

But as I've learned over the last 2 years we got it wrong. Really really wrong. And we ARE treatable. I spent 15 years housebound and in excruciating pain 24/7 with joints and organs slowly failing. What should've been the best years of my life were stolen from me and what I've lost during that time is immeasurable, irreplaceable, and unforgivable. 

And finally, after 18 months of study and trial and error I've gotten myself stabilized and on the upswing. There's hiccups here and there as I'm sure there will continue to be for a bit, but when my levels are where they should be it's like I was never sick. They were right about it being genetic, but wrong about the type of gene.

​I've still got a ways to go, I have decades of damage to undo. Regaining strength will be a process.

But I'm looking forward to taking my life back.

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I appreciate everyone's patience and understanding navigating this nightmare. It's not something anyone should ever have to go through let alone go through completely isolated, but I made it <3

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